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Am I Going Bald, Again?

Sunday, January 31, 2010

©Survivorship Media Network, LLC.  All rights reserved.

One of my mother’s favorite things to say is, “You have no idea what it’s like to get older.” I’m always amazed at how she manages to say this with a straight face, ignoring she gave birth to me when Howdy Doody was at the peak of his career, or that it won’t be long before I qualify for Senior discounts, thereby calling further attention to the fact that I do know what it’s like to get older. <PREVIEWEND>

“Wait until you go into a room and can’t remember why you went there in the first place,” she continues, “and your knees hurt when you get out of a chair and you start loosing your hair.”

“Been there done that,” I want to say. “Side effects of chemotherapy,” but since mother has dementia and looks puzzled when I mention having had breast cancer, I let my comments go unspoken. The worst thing is that all of mother’s harbingers of aging still apply to me even though my last chemotherapy ended five years ago! Actually the worst thing is that I’m losing my hair, yet again, and I’m not alone.

Many women have problems with thinning hair. Other than taking chemotherapy, possible causes could be thyroid problems or maybe those women are post menopausal. Perhaps they are breast cancer survivors who are taking Aromatase inhibitors to stop their production of estrogen and keep cancer at bay. The latter case applies to me and I feel like everyone, including the plumber, has discovered my condition.

A few weeks ago he pulled something out of our shower drain that looked like a limp, wet rat. “Wow,” said the plumber. “Looks like you’re loosing your hair.”

Thanks for the reminder, pal. Perhaps I should look into getting a wig or do you think anyone would find it strange if I started wearing hats or is that a woodchuck?


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I Feel Like a Lab Rat

Sunday, January 24, 2010

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So far on my breast cancer journey I’ve had nine surgeries, eight rounds of chemo, three ‘let’s check this out’ procedures accompanied by anesthesia and at least seven ‘let’s check this out’ procedures without anesthesia. The last with anesthesia was an endoscopic tour of my pancreas. This was a precautionary measure because I carry the BRCA2 gene. That means in addition to an increased risk of breast and ovarian cancer, I have a higher than average risk for melanoma and pancreatic cancer.

Do you know what an endoscopic excursion involves? Just as they’re about to administer the anesthesia, they ask you to swallow a garden hose with a light, a camera and a scalpel attached. We’re having some fun now! <PREVIEWEND>

Mind you, I’m not complaining. This isn’t one of those “Oh, they’re spending my money, running all these tests,” because as my wonderful physician Dr. Jim Martin says, “We’re going to watch you like a hawk from here on out.” That’s fine with me but after my recent breast surgery number nine to keep my new implant where it’s supposed to be, by stitching a sling out of cadaver skin to my ribs for the implant to rest in, I am beginning to feel like a lab rat.

Why did they do that, you ask? Because my five-month-old silicone gel implant dropped halfway between where it should have been and my navel. I must say it was an unusual site, ranking up there with the bearded lady in the circus, and rare enough to make my plastic surgeon do a double, no a triple take and ask if I jumped rope or tap-danced as a hobby.

Most days I do pretty well relinquishing control of all of this to God, although there are days I greedily snatch it back and act like I am not running through this crazy maze for nothing! For the most part God has made my fears disappear and for that, I am humbled and grateful.

However, if I may say so, instead of breast cancer surgery Number Nine, I would much rather have had Love Potion Number Nine. “I held my nose, I closed my eyes… I took a drink.” Come to think of it, I’ve done that already.



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Are You Gaining Weight or Gaining Estrogen?

Monday, January 18, 2010


As we age many women gain weight due to our high fat, oversized portions, preservative laden, lack of exercise, menopausal American lifestyle. As a result, excess weight around a woman’s waist often results in excess estrogen in the body. If you’re like me and are “of a certain age” and your breast cancer was estrogen positive, this is not good news because estrogen fuels your cancer. Therefore we need to keep our weight down and avoid products and foods that contain estrogen or convert to estrogen-like compounds in our bodies.

Other than hormone replacement therapy, one of the biggest sources of estrogen is soy. I know we’ve all heard soy is a breast cancer inhibitor, but this is a complex issue and one that is fraught with controversy. Regardless, once you have been diagnosed with estrogen positive breast cancer, soy is at the top of the list of things you want to avoid. Stay away from products high in soy as well as estrogen-like substances called isoflavones, pesticides and herbicides in fruits and vegetables, hormones in meat and dairy products, plus canola, corn and safflower oils. Body and skin care products containing soy and parabens, which convert to estrogen in the body, should also be avoided but that is a topic we will save for another day. Estrogen, soy and parabens... Talk about a can of worms! So what do we do? What do we eat? <PREVIEWEND>

If you’ve been diagnosed with estrogen positive breast cancer and/or are menopausal, and without notice turn into the werewolf from Waxahachie, the plot thickens. To keep my breast cancer from recurring, my doctor wants me to avoid all forms of estrogen including estrogen creams, patches and foods containing estrogen, plus I am taking Arimidex, which keeps my body from making estrogen in the first place. I’m told if you stand too close to me you can actually hear the estrogen being sucked out of my body or… maybe that’s the heart palpitations… due to my lack of estrogen. You may ask "what about bioidentical hormones?" which again, we will save for another day. Either way, girlfriends, I hear your pain.

There is however some good news about what we can do to reduce excess estrogen. My friend, Lisa Powell, Director of Nutrition at the fabulous Canyon Ranch resort and spa in Tucson, Arizona, is not just an expert on integrative nutrition as well as preventive and wellness nutrition, but she is a breast cancer survivor. A couple of years ago I had the pleasure of hearing Lisa speak to a group of survivors. In addition to avoiding products with soy, Lisa gave us some rules of thumb for managing our weight and reducing our risk of recurrence.

1. Be as lean as you can, within normal body weight, but not skinny.
2. Be physically active every day, walk 30 minutes, six days a week.
3. Limit sugar, processed foods and fast foods.
4. Eat a diet primarily of plant origin, including berries, nuts and seeds.
5. Limit red meat and processed meats.
6. Limit alcohol consumption.

The issues surrounding breast cancer and estrogen are complex indeed. Now that half of all medical students are women, hopefully more attention will be paid to the cause and effects surrounding women’s health issues. In the meantime, do your best to control your weight, exercise regularly and avoid soy. You may also want to get one of those bumper stickers that warns people, “I’m out of estrogen, and I have a gun.”


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Women and Facial Hair

Sunday, January 10, 2010


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Your Breast Cancer is Stage Now

Sunday, January 03, 2010


From the second we hear “you have breast cancer,” we begin talking in terms of what stage cancer we have.
Stages are assigned according to size of primary tumor, lymph node involvement and whether or not your cancer has spread but, what if we consider another stage? Stage Now? “Having a life” as opposed to “having cancer.” <PREVIEWEND>

Too many of us let our survival mindset be determined by the stage of our cancer, even though many of us know of cases that prove ‘stage’ is not always an accurate predictor of survival. Take Lance Armstrong who in 1996, was diagnosed with Stage IV testicular cancer that had spread to his lungs, abdomen and brain. His doctors gave him less than a 3 percent chance of survival, and we all know chapter and verse of that story! If Lance Armstrong had embraced the odds his doctor’s had given him, it is quite possible he would not have survived.

Instead Lance Armstrong went through the ravaging treatment protocols prescribed by his doctors, and three years later not only won perhaps the most grueling sporting event in the world—the Tour de France—but beat his nearest competitor by 7 minutes, 37 seconds. Now that’s somebody with Stage Now! He has a life to lead, bikes to ride, new and different goals to accomplish. Not only did he refuse to become a statistic, his victory has led the way for all who come after him to strive and survive. His life is one of courage and determination and as his mother says, “make every obstacle an opportunity.”

And so my sisters, YOU are in Stage Now. What are you going to do with it? Are you going to sit in fear of death (we all do that from time to time) or are you going to live the best lives you can?

I challenge you to make a list of the things you’ve always wanted to do but were afraid to try, or were going to do “someday.” Parasailing, learning to play the guitar, apologizing to someone you’ve wronged, learning to dance, visiting another country. Make a list and do them, one by one. You’ve already done the hard part. If you can go through breast cancer, you can do anything!


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